Monday, August 31, 2009
Dredging up information
I constantly have upper respiratory infections, especially around my menstrual cycle. I am once again sick, and I am on vacation too, its not fun. I find as I observe the people around me that I act more as an old woman than I do a young girl of 21. I am constantly tired and often easy to wear out. I have to pace myself and its very depressing, because next week I could be wound up like an 8 day clock and you won't be able to slow me down, but I always begin to crash. I have recently realized how much I have been in denial of carrying this disease even though the doctors say it is no longer active in my body, it is still weighting me down. I was 13 when I was diagnosed and I knew what my parents and doctors told me about the disease, but I never really looked into it for myself, I thought I knew about it, but as I do research on my own I recall things I was told and understand them differently, I find it very frightening to read these things about IgA, it is scary to know that if I don't take care of myself properly that, that bad case might end up being me. I am trying to gather information so I can give a correct description of IgA nephropahty, but there is so much mambo jumbo and things to cover that I am finding it very challenging to get down the correct information, it is difficult because there is still alot they don't know about it, especially how it is contracted, but I keep running into strep, respiratory and sinus infections, that the people who contracted IgA have issues with these problems, I am researching IgA antibodies and how they associate with these types of infections, granted I keep running into websites for IgA giving summaries of the disease, but while they all give similar descriptions, I find a little extra information on each different site, right now I am on the foundation of IgA website I am not really pleased with any of the ones I've been on they keep saying they are for the people but I find them confusing and impersonal. There are alot of technical terms that I keep having to open up multiple tabs to research them, its bad that I feel ignorant when attempting to read about my own disease it is very frustrating but I fully intend to gather correct and understandable information, not only to educate myself and bring a better understanding but to hopefully, give anyone who is going through the same struggle as I am a more peace of mind feeling instead of eye straining frustration on what this disease is all about. Well wish me luck I am going to go see dredge up some more information. Heaven help my tension span.
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